Information in this section is to support professionals who care for young people with a learning disability.
Information is available including the Primary Care Learning Disability Register, Annual Health Checks and advice for HCP’s on making reasonable adjustments that will improve access to your service for those with a Learning Disability.
Other Resources
Learning Disability (Herefordshire and Worcestershire Integrated Care System)
Why annual health checks are so important for people with a learning disability (Mencap) Information on why Annual Health Checks are important for people with a learning disability
Making a Difference Toolkit (keele.ac.uk) This Toolkit aims to support access to healthcare for individuals with a learning disability. It contains over 40 components including videos, PowerPoint presentations and downloadable documents and includes a section with resources to support people with learning disabilities to access end of life care.
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SENDIASS Worcestershire and Herefordshire (hwsendiass.co.uk) SEND Information, Advice and Support Service covering Herefordshire and Worcestershire.
Palliative care for people with learning disabilities (mariecurie.org.uk) People with learning disabilities often have additional needs in palliative and end of life care. Marie Curie provides information for healthcare professionals to help them understand and consider these needs when providing care and improve people's quality of life.
Delivering end of life care for people with learning disability.pdf (england.nhs.uk) This guide supports commissioners, providers and clinicians to reduce inequalities in palliative and end of life for people with a learning disability, focusing on 'The Ambitions for Palliative and End of Life Care'.
How to support people with learning disabilities.pdf (england.nhs.uk) A guide for GP surgery staff to assist them in supporting people with learning disabilities to access their services.
Easy Read Resources
Easy Read resources are provided below may assist you in communicating with individuals who have a Learning Disability but others may be found online.
Easy Read - My Hospital Passport.pdf (hillviewmedcentre.co.uk) Easy read Health Passport for young people.
Easy read booklets (mariecurie.org.uk) A collection of easy read booklets from Marie Curie.
Microsoft Word - End of life Book (pcpld.org) Example of an ‘End of Life’ book for individuals with Special Educational Needs and Disability.
My plan for before I die - Easy Read (macintyrecharity.org) Easy read form to help discuss what someone wants to happen when they die. A guidance document is also provided for professionals.
An easy read guide for young people transitioning to adult’s services (WellChild) An easy read guide for young people with complex needs aged 15-18 who are transitioning to adult services. A link to the PDF document is at the bottom of the page.
“Without the right understanding, autistic people can miss out on adjustments needed for them to engage in medical appointments, which often leads to distressing experiences, avoiding seeking medical attention or losing out on support.” - National Strategy for Autistic Children, Young People and Adults: 2021-2026.
NHS Herefordshire and Worcestershire has produced a set of educational videos about sensory needs and autism, which describe simple and straightforward reasonable adjustments that can be made:
Autism and Sensory Friendly Environments - Herefordshire and Worcestershire Integrated Care System
National Autistic Society (autism.org.uk) The National Autistic Society provides information and resources to support to those who are autistic or who look after someone with autism.
SEND Training Assurance Framework.pdf (councilfordisabledchildren.org.uk) Competency framework and training links for professionals supporting people with learning disabilities.
