Advance Care Planning (ACP) is a voluntary process of person-centred discussion between an individual and their care provider(s) about their preferences and priorities for their future care. It is a personal choice for each young person as to how they want to be involved in this process and some young people may not want to be involved at all.
A young person may reach the end of their life at any point along their transition journey or in early adulthood. Research suggests that creating an ACP can help young people and their loved ones feel more confident that their care and treatment will be focussed on what matters most to them in a personalised, holistic way and helps them to live as well as possible.
A Recommended Summary Plan for Emergency Care and Treatment (ReSPECT) process creates personalised recommendations for a person’s clinical care in emergency situations when they may not be able to make decisions or express their wishes.
For children and young people under the age of 18, preferences for care may be documented in a Paediatric Advance Care Plan (ACP) and for those aged 18 and over, in a ReSPECT Plan or Advanced Care Plan. Children’s services will discuss changing from a Paediatric ACP to an adult ReSPECT Plan or ACP with young people and their family/carers as part of transition.
ReSPECT (clarity.co.uk) The H&W ReSPECT hub is a page for Health and Social Care workers to access resources and information regarding the ReSPECT process in Herefordshire and Worcestershire. Resources include key contacts, downloadable patient leaflets and links to training.
ReSPECT | Resuscitation Council UK National resources and direct support for patients and their families.
Universal Principles for Advance Care Planning.pdf (england.nhs.uk) Sets out six universal principles for a personalised approach to ACP. It is for the person, those important to them, practitioners and organisations involved in supporting advance care planning conversations and honouring their outcomes
Advance care planning | Information for professionals (mariecurie.org.uk) Information and resources for professionals who are involved in ACP.
Hiding who I am - The Reality of End of Life Care for LGBT People LGBT people experience significant barriers to getting palliative care when they need it, this report explores why and makes recommendations to service providers to enable them to address these barriers.
Caring for a child at the end of life - A Guide for Professionals on the Care of Children and Young People Detailed resource from Together for Short Lives for professionals including care before, at the time of and after death; bereavement support, staff support and practice prompts.
End of Life planning sheets End of Life planning practice prompt sheets, which highlight key elements from each chapter of ‘Caring for a child at end of life guide’ by Together for Short Lives.
Difficult Conversations for Young Adults A resource to help Health Care Professionals (and the families or carers they support) to approach conversations with young adults about their end of life plans.
End-of-life Care For All (e-ELCA) - elearning for healthcare (e-lfh.org.uk) E-learning programme for End of Life Care designed for those working in Health and Social Care; includes over 170 sessions grouped into nine modules.
HEE elfh Hub (e-lfh.org.uk) eLearning: Advance Care Planning module of the End of Life Care Programme. This module explains the principles and purpose of ACP, its benefits, and limitations and how to carry out ACP in practice.
HEE elfh Hub (e-lfh.org.uk) ReSPECT Awareness E-learning module: highlighting the ReSPECT process and providing professionals with the tools to respond appropriately to a patient with a ReSPECT form in an emergency. * This link is current at the time of writing, please check the RCUK website for the most up to date courses regarding ReSPECT. *
HEE elfh Hub (e-lfh.org.uk) ReSPECT Authorship Training E-learning module: aimed at Health and Social Care professionals having ReSPECT conversations and completing and endorsing the patient held form. * Whilst this link is current at the time of writing, please check the RCUK website for the most up to date courses regarding ReSPECT. *
Finding_the_words_Workbook_web_1.pdf (westsussex.gov.uk) A resource for Health and Social Care professionals who support people and families at the end of life
